The aim of this survey is to understand how the current situation is affecting sarcoidosis patients. This includes their experience of lockdown, shielding and, if applicable, treatment for coronavirus.
Ideally, we would prefer sarcoidosis patients to complete the survey. However, if someone with sarcoidosis is unable to complete it for whatever reason, a family member/carer can complete the survey on their behalf.
We will use this information to direct our advocacy work so we can best represent sarcoidosis patients, inform future service provision and contribute to a greater understanding of how rare disease patients are affected by coronavirus.
Your response can be anonymous unless you choose to leave your contact details.
If you have any any questions, please contact us on [email protected] on 020 3389 7221.
This questionnaire uses questions from the King's Sarcoidosis Questionnaire, which is copyright of S S Biring of King's College Hospital, London.